Showing posts with label bone marrow transplant. Show all posts
Showing posts with label bone marrow transplant. Show all posts

08 September 2013

Caleb's talk on faith

Caleb gave this talk in church today.  He wrote the entire thing himself, and we only saw it for the first time last night before he went to bed.  I think he did an excellent job!

Good morning my brothers and sisters.  Today I was asked to speak on faith.  In the Book of Alma we read about Alma’s definition of faith.  It reads (mark #1 Alma 32:21).  In addition to this the Bible Dictionary says that “To have faith is to have confidence in something or someone.” (pg. 669)  Faith can help us to achieve many things.  In Jacob chapter 4, we read that “we truly can command in the name of Jesus and the very trees will obey us, or the mountains, or the waves of the sea.” (Jacob 4:6)  

In order for these kinds of things to happen, your faith must be unwavering.  So how do we strengthen our faith?  Some standard Sunday school answers would be; going to church, reading your scriptures, and saying your prayers.  These answers are all correct, but I find that faith is really boosted through trials.  In a talk by Neil L. Anderson he says, “…as we remain faithful during the fiery trials of our faith, we are spiritually refined and strengthened.”  (Trial of your Faith, Elder Neil L. Anderson)

I have had a trial that tested my faith.  It happened just over a year ago.  I was diagnosed with a terminal blood disorder called aplastic anemia.  When you have aplastic anemia, your bone marrow just shuts down and you don’t produce any blood.  When we found out that I had this, I had very little blood left in me, and what was left was so thin, the doctors said it looked like Kool-Aid.

I spent the next month or two going in and out of the hospital.  At this hospital, I received many blood transfusions.  Later, I went to another hospital, where I would be receiving a bone marrow transplant.  To do this, they had to first kill off the rest of the bone marrow that was still producing blood in my body.  They then replaced my marrow, via a chest catheter.  My new bone marrow came from my loving sister, Brooklin.  

Now, during this time in the hospital, I and stuck in the same room for a month.  I couldn’t even go into the ante-chamber that goes to my room.  This prevented me from attending church and seminary right?  Not necessarily.   The hospital provided an iPad and I put it to good use.  Every school morning at about 6:30 am, I would FaceTime to an iPod my sister took with her to seminary, and I would participate in seminary.  Every night around 7:00 pm, I would FaceTime to that same iPod, and I would participate in family scriptures and prayers.  This helped me a lot.  It helped me to keep myself upbeat and happy with all the complicated things that were going on.  It also gave me a better appreciation on being able to attend things like church and seminary in person.  This helped me to strengthen my faith because, with Heavenly Father’s help, I was able to live through something that should have killed me.  

I know that I have strong faith in Jesus Christ.  I know that we are given trials for a reason.  I know that we can walk away from our trials with a stronger faith in Jesus Christ.  I say these things in the name of Jesus Christ Amen.

01 September 2012

STRENGTH / streNG(k)th / n.

I can't believe she did this...and neither can her doctors! The recovery paper the docs gave us said, "Weeks 2-4: Avoid strenuous activities such as jogging." She came in 9th place!! She is such a strong girl and I love her!





Facebook comments:

Jenn Dennis Can I share this? I am seriously tearing up. She is such a strong young woman. :)
September 8, 2012 at 3:03pm · Like · 1

Melissa Jensen Absolutely! Thanks Jenn
September 8, 2012 at 3:04pm · Like

Cathy Leonnig Bishop Wow! Amazing!
September 8, 2012 at 3:05pm · Like

Amber Moniz · Friends with Brooklin Jensen
Brooklin is a role model!!!
September 8, 2012 at 3:20pm · Like · 1

Leilehua CrossCountry · Friends with Brooklin Jensen
Yah we got yelled at from the trainers =).
September 8, 2012 at 3:26pm · Like · 1

Rhiannon Lee · Friends with Brooklin Jensen
Hahahaha :'D
September 8, 2012 at 3:29pm · Like

Leilehua CrossCountry · Friends with Brooklin Jensen
The Kalani trainers were like, "WHAT!!!! And shes running?!!!!"
September 8, 2012 at 3:30pm · Like

Rhiannon Lee · Friends with Brooklin Jensen
How did she feel?
September 8, 2012 at 3:30pm · Like

Leilehua CrossCountry · Friends with Brooklin Jensen
She was like Chris at kalani last year =).
September 8, 2012 at 3:32pm · Like · 1

Rhiannon Lee · Friends with Brooklin Jensen
Ahhhh hahaha how many cups did she eat! :DD
September 8, 2012 at 3:33pm · Unlike · 3

Mia Wolfe League Just plain awesomeness.
September 8, 2012 at 4:03pm · Like

Dawnmoana Brash Fabulous... just fabulous!
September 8, 2012 at 5:32pm · Like

Gma Pita HE promised, "And shall run and not be weary..."
September 8, 2012 at 8:20pm · Like · 2

Michaela Ross · Friends with Brooklin Jensen
Brooklin is an amazing girl! We are so blessed to have her as a teammate
September 8, 2012 at 9:43pm · Unlike · 2

Brooklin Jensen Thanks everybody, it means a lot (:
September 8, 2012 at 9:49pm · Like · 2

Jana Krout Pierce Amazing!
September 8, 2012 at 10:49pm · Like

Mary Eccles · Friends with Brooklin Jensen
I love my brookie! so strong.... look on trainers face was priceless

September 9, 2012 at 1:15am · Like

14 August 2012

Bone Marrow Donation and Transplant Day

IV in and ready to go
Today was very long and very emotional! Brooklin's procedure took three hours, but she came out all smiles. After collecting 1200ml of bone marrow, the doctors sent the blood to be processed at another facility. Brooklin received a transfusion of her own blood that she donated for herself during her time in the operating room. She is pretty sore now, but has some medication to lessen her pain. She surprised the doctors by getting up and walking (very slowly) around Caleb's room just hours after having her procedure.
Dressed and ready for her procedure
     
Screenshot from my facebook feed.

Out of surgery and in recovery.


















Eating an otter pop in recovery
She felt much better after having lunch!



Caleb's procedure took a little over an hour. The first bag and a half (of three bags) of bone marrow for the transplant were the hardest. Caleb's blood pressure spiked to 175/100 and he had a massive headache. (all "normal" reactions that the doctors were prepared to address). He was sobbing and grabbing his head it hurt so bad. His muscles were also making him twitch and jerk uncontrollably. I tried really hard not to let him see me crying...and I just kept rubbing his hands and wiping the tears off his face. I am so grateful that Brooklin was sleeping through the first part of the transplant and didn't see him in so much pain. She had such an amazing spirit through all of this today! 





After they gave him some medication to lower his blood pressure, he calmed down and went to sleep. The last half of the transplant went fairly smoothly. He even got up and stumbled to the bathroom twice during the procedure...which is just like a blood transfusion. They just hook the bag of bone marrow up to his IV and let it flow in.  

On a side note...Caleb had been watching Star Wars Episode III: Revenge of the Sith before the transplant started.  As his blood pressure was spiking and he was having the hardest time, there was ultra-dramatic music playing in the background.  It was at the part of in movie where Anikin is fighting Obi-Wan in the lava and loosing his limbs and then becoming Darth Vader.  It was kind of weird and crazy that it happened that way.



Tray full of medications for anything that could go wrong...
So proud of these two for making it through all this!!



They were watching Star Wars throughout the transplant

Resting during transplant


Dr. Wada, Dr. Glaser, Carol, and 2 nurses


Seriously high blood pressure!

Brooklin's IVs

One of three bags of bone marrow


The most touching part of this day was when we were leaving to take Brooklin home, Caleb got up and hugged me and then my sister...and then he gave his sister the sweetest hug I have ever seen. They were both in pain and really tired, and that hug just made my tears flow freely. I love my children and am grateful they all love each other so much. I am also grateful that God and his angels were there with us today helping us make it through, and that I have such amazing friends who cared for my other children today!



At home resting with baby sister.

13 August 2012

Day 6 - One Day Before Transplant


Caleb had a pretty hard day today. His body isn't liking all the meds he's had over the past 4 days and it's rebelling against him. He hasn't eaten much the last two days and when he does eat, it causes a ton of abdominal pain and he ends up retching it back up (pretty violently). He is beyond homesick and really just wants to come home. =( 

Tomorrow is transplant day and both of my big kids will be in the hospital. I am so grateful for those who are praying and fasting for them (and the rest of us) and for everyone here who is helping me out tomorrow! We couldn't do this on our own! Brother Chandler came to the hospital and gave both Caleb and Brooklin a priesthood blessing tonight and I know that angels will be with them and the doctors tomorrow. God is good and I know that everything will be ok.

(Facebook comments)


Kris Gregson-Clark We are all praying
August 13 at 11:15pm via mobile · Like · 1

Angeline Morrill-Quiner Melissa, we are hoping and praying for the best. so sorry he's having to go through this trial.
August 13 at 11:19pm via mobile · Like

Dulcie Larsen man after all this a mission will be a piece of cake for him!!!
August 13 at 11:22pm · Like · 1

Gma Pita It's been an honor to unite our faith with yours through fasting and prayer. I know Our Father will answer in love, peace, and endurance. <3 font="font">
August 13 at 11:27pm via mobile · Like · 1

Emily Scott Lockie I am so sorry to hear this, this is so sad. I hope that he feels better and stronger soon. Good luck to you all - we are praying for you!
August 13 at 11:28pm · Like

Kathleen Houtz Benner Prayers going out to your family.
August 13 at 11:39pm · Like · 1

Renee LeAnn Clark Praying that all goes as planned.
August 14 at 2:31am via mobile · Like

Lisa Martello-Henning Praying for your whole family! Stay strong.
August 14 at 3:26am via mobile · Like

Laura Sanders Vancour thinking and praying for you guys!!
August 14 at 3:35am · Like

Angela Parker Dorman We love you guys too.....we will continue to pray for you all!
August 14 at 5:23am · Like

Andrea Thayn Griffin praying for you all
August 14 at 6:29am · Like

Dianna Cheney Ashton our prayers are with you.
August 14 at 7:16am · Like

Mindy Patterson Andrew Thoughts and prayers for your family.
August 14 at 7:18am via mobile · Like

Mia Wolfe League Oh Melissa, I am so proud of you. I usually do not remember to get priesthood blessing for my family...but when I do get them the blessings are amazing and help carry me through the hard times. I know with all my heart angels will be watching your children. I will continue to pray and will not stop until you tell me to.
August 14 at 7:52am · Like

Heather Malone Mumm We are praying for you sweet thing Im so sorry this is happening our hearts are with you all!
August 14 at 7:53am · Like

Steph Alaska Praying today!! Blessings are wonderful fulfillment of the priesthood
August 14 at 8:48am · Like

Annjanette Blackmer Whiting We love you all! Praying for you!
August 14 at 5:10pm · Like

Laura Tucker Thinking of you all, in my prayers and thoughts
August 15 at 10:59am · Like

05 June 2012

Bone Marrow Biopsy

Caleb had a bone marrow biopsy this morning at 10:30 am.  They put him to sleep for the procedure, which took about 30 minutes to do.  The procedure was done on his lower back (where the oval shaped bandaids are on his back).  They put a needle into the bone and draw out bone marrow fluid and tissue.




It took Caleb along time to fully wake up from the procedure.  He was really out of it until about 3pm.  This photo was taken around noon.  I asked him if he could give me a thumbs up...he did, but he doesn't remember doing it. =)  During the initial wake-up period, he asked for his dad every few minutes (who left right after he went to sleep to take care of the other kids at home) and he wanted to know what time it was a lot.